Update

Thanks for all your comments and support for Jordan. We're so lucky to have such great friends and family.

Jordan came home yesterday!! Yeah! We're really not sure exactly what was causing the initial symptoms, like her turning gray/blue. After being in the hospital for a couple days she came up with a really bad cough and they said it was bronchiolitis. But it's strange that she wasn't a bit congested before she got there. I'm sure she was infected before she got there though because I think it take a week or 2 to show symptoms once you've caught the virus. So, because it was a virus, antibiotics don't do anything to help. So they do what's called CPT's which is basically pounding on her back and chest with an inflated oxygen mask (it sounds strange but it works so well and doesn't hurt at all...). I guess the sound waves from the pounding breaks up all the gunk in her lungs so she can cough it up easier. Along with that they suctioned out her nose every couple of hours with the sucker machine attached to their wall. I'm not sure what the name of it is but it works! And probably once a day they used this little mini tube to "deep suction" her, which goes up her nose, down the back of her throat, and down close to her lungs to suction out what she might be having a hard time coughing up. So now that we're at home she's drinking pretty good but it coughing like crazy. But of course she's TONS better than she was.

Jordan is suppose to have her follow up testing done on her back in about 1-3 weeks. They have to schedule a time when they can use anastesea (I can not spell that!) to help her be mellow while they do the scans because she'll scream and flail the whole time if they don't. I'll keep you all posted on when that test will be. I'll also try to post some pics next time too.

Jordan

I know it's been FOREVER since I've blogged. I am SO sorry! I'm hearing all about it though so i'll try not to let it happen again. This will be a fairly short entry so i'll update you all on other things going on when I can...

Jordan is in the hospital again. We took her in Tuesday night. She woke up with a fairly high fever, gray/blue lips and face, shaking really bad and breathing really shallow and really quickly. These are the same symptoms she had when she had a kidney infection about a year and a half ago so I thought that's what it was. After waiting in the ER forever (you all know how fun that is in the middle of flu season!) they brought us back to have her vitals taken and to explain to the Dr. why we came in and he pretty much immediately told us that he wanted to keep her for observation. All her results have come back negative so far which is good but she's still extremely agitated almost constantly, won't let me lay her down (she screams like she's in pain when laid down), and just really isn't herself. She's eating okay but she refuses to drink anything. The fevers have now stopped but with her drinking NOTHING in almost 2 days (she is on IV fluid though...) and with how cranky and not herself she's being they're going to keep observing her. The hospital we took her to is Banner Desert which is the closest one to our home. I picked this one to take her to this time because she was blue, not breathing, and I thought we'd be home the next day. But- this hospital is not her "neuro" hospital. That one is out in Phoenix. Actually, this hospital doesn't even have neurosurgeons in it at all. So, the Dr. decided that if she continues to be agitated tomorrow they'll probably send her to the other hospital to get some tests done for her shunt and other neuro stuff.

Those of you that I talk to at church might remember me mentioning that we've been waiting on results of Jordan's MRI she had of her spinal column that was done in the beginning of Feb. We had heard a couple weeks ago that Jordan's neurosurgeon saw the MRI and wanted more tests done. They said something about how he wasn't clear on what he was looking at, or something to that effect. Now, since her neurosurgeon is one of the best in the world (I know, we're really lucky!), him not understanding what the test was showing, it's not really reassuring. I got a call Wednesday from his nurse saying that they wanted us to get those follow up tests done that day. But- we're in the hospital and can't! We're in the OTHER hospital- the one that does nothing with Neuro stuff. So I asked her exactly what they saw on the scans. Why do they need more tests?! So the nurse explained to me that they saw cysts on Jordan's spine. She said that it looks like a string of pearls of all different sizes pretty much the full length of her spine. They don't know why they're there, what exactly they are, if they're attached to her spinal cord, causing discomfort, nothing. So that's why they're wanting to run more tests. What are these things?

So, I'll keep you all posted on what's going on as much as I can when I take my breaks from the hospital. Keep her in your prayers please =). We know she'll be okay but the more help the better.